Ella died only 8 yrs old in 2014. She was born healthy in 2006 but when she was only 2 yrs old she started to lose balance and fall down a lot. She lost her voice, her ability to walk, talk and swallow fast. Ella almost lost her battle many times but fought against all odds to a unknown disease.
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Team

Ragna Erlendsdottir

Creator
  • hairdresser
  • carer

Further Information

I have wanted to share our story for a long time, but never really seen it happen and that it would come true but I always kept dreaming and I didn't give up hope.To write her story is so difficult, it is painful to relive all the pain,defeat and injustice that we had to endure. But for a long time we had to fight the Icelandic health care system, the doctors and authorities for fundamental human rights for Ella Dis. With this fundraising project, by Karolina fund, I hope to be able to print 1.000 copies of our story that I know that many Icelandic people know so well and are interested to read, as we had a popular blog on visir.is for many years and a lot of media coverage. As I managed to help Ella and travelled with her around the world in search of a doctor who could possibly help find the answer to Ella's illness, and why a perfect healthy little girl got sick so fast and so badly.

A video I made about Ella Dis and us ....

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2% FUNDED
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